quote:
Originally posted by unknownjulie
WE had just literally walked in the door. My child did not break any rules of the facility. The "complaint from the older members had to do with their 'concentration' being broken"- when we were there last week. My son is " a little off". He sometimes says inappropriate things. He can interrupt etc. I may have to tell him several times to do something. He takes medication for OCD, but he's diagnosed with "Asbergers". He has been in SPED in school, but I recently started homeschooling him. And the truly upsetting part about it, is that I could see he is "really trying to behave and be good" - while at the club. I am happy to keep him away from the "older complaining members" but that wasn't the discussion. It was just "carte blanche" - as soon as I walked in the door with him standing there beside me. Just a statement that "your son is no longer going to be able to participate"... I guess the reason I posted about it is to remind people that there are people all the time that are having problems and to just try and be tolerant. What appears on the surface of a situation, may not be what you assume to be going on at all...
Julie, my heart goes out to you. Being on the autism spectrum (sounds like Aspergers) is so tough - you might outwardly 'appear' normal, but the nature of the disorder often results in the socially awkward situations that your son may have found himself in. My father-in-law and brother-in-law are both high-functioning autistic/Aspergers, but it's been a tough row to how for both of them - not knowing how to engage with other people, being "too loud", saying abrupt things, etc. I was definitely thrown for a loop when I met both of them for the first time. Admittedly, there are still times when they both embarrass the heck out of me in public. There is more and more information flooding the public about these disorders, but as we all know, Hawaii is a little behind the times. AND it makes it tough to not be outwardly "obviously" disabled...I bet you get a lot of looks and comments when someone can't immediately sort out what is up with your boy. It's hard, isn't it? I am so glad, though, that I married into a family with these disabilities - it has shown me how much can be achieved with some hard work, family support, & determination: my brother-in-law has gone from being a non-verbal hand-flapper as a child to having a full 4-year scholarship to a prestigious east coast college.
If you need any support like social skills training for your son, TIFFE and Hawaii Behavioral Health both provide support to families. I can't personally attest to their exact formula, but I could imagine they do a lot of work similar to my mother-in-law's (she is a specialist with CARD, the Center for Autism and Related Disabilities @ University of Central Florida - she provides families with kids on the spectrum with resources, specific skills training, etc.). My husband and I are both trying to work for either of these organizations, actually - they operate in the public schools, from what I can tell.
Good luck to you both, and keep your chin up and your voice heard. There's plenty of people in the world that still need to be educated about disabilities.